This article is about a “GFCF Kids Diet Survey” which is an internet based survey used to gather information about dietary intervention such as a GFCF diet, for patients on the autistic spectrum. This article explains that many researchers are working to find the possible link between “incomplete breakdown of proteins (identified by the abnormal presence of opiate peptides found in urine samples), and several kinds of health problems hitherto classified as "mental." Among these problems are Autism, Pervasive Development Disorder (PDD) and Asperger’s Syndrome.”

The survey was designed so that researchers would be able to collect as much information as possible on the diet, and then analyze the data in an effort to shed more light on the possible connections.  The survey consisted of two questionnaires, called the Main Survey form and the Infringements Experience form. The three basic questions asked in the survey are: “What percentage of respondents get better on the diet, how much improvement can there be, and how fast does this happen?”  In addition to those questions, the survey also asks questions such as,Why do some patients get better results than others? What are the similarities and differences between those who do well on the diet, and those who don't?” The article also discuss the various aspects of the survey, such as the methods used, the surveys reliability, as well as the specific questions included in the main and infringement questionnaires. 

The conclusion of this survey suggests that although the results are from an informal survey, they indeed support the belief that dietary intervention “can be a valuable treatment option for some people with autism spectrum disorders, and in some cases, may lead to the complete reversal of autistic behaviors.”  The results also suggest that” time” is one of the most crucial factors in this diet, meaning that a patents success has a lot to do with the patients age at the time the diet was implemented.

If you are interested in learning more about this survey, follow this link:
http://www.gfcfdiet.com/dietsurveysept2.htm
 
When I started reading the first chapter of the collaborative writing article, I really was rather confused about what the authors were saying.  I didn’t really begin to understand where they were going with everything until I reached the second chapter, where they began explaining the hierarchy of writers.  To be honest, I actually thought it was all pretty interesting, especially because of how I’ve always viewed group work, which from my experiences, has been neither cooperative nor collaborative, to say the least.

When I finished reading the chapters, I truly thought I had a really good grasp on the difference between cooperative and collaborative writing.  So much so, that I had absolutely no issues when writing my summary.  In fact, it all made perfect sense as I was writing it, but as soon as I tried to actually verbalize the differences in my own words, I realized that I wasn’t quite as clear on it as I had thought. It seems easier to say what collaborative writing is not, rather than what it is.

Though I may not be perfectly clear on the differences between cooperative and collaborative writing, I can certainly say that I have had some of the worst experiences ever with “cooperative” writing.  About 90 percent of the time I am the one who gets stuck doing most of the work in group projects, even when we each member has a specific role in the group.  

Although I would like to sit here and blame everyone else for the many reasons I hate group work, I think it’s only fair that admit that I am a lot of the reason I hate it so much.  But then again, this is only because I’ve been permanently scarred from my past experiences.  What I mean when I say it is partially my fault, is that I’m a tiny bit of a control freak when it comes to my schoolwork, and I can’t stand to turn something in if I don’t feel that it is up to my standards. I can’t even begin to tell you how many times I’ve had to go back and redo someone’s work because they haven’t even done so much as to take a few minutes to reread their work and check for proofreading errors before giving it to me. 

Having said this, I would like to note that for the first time ever, I am not having any issues with my current partner.  Though I wouldn’t necessarily say that we’re working collaboratively, I would say that we are certainly working cooperatively together.  I’m not sure if we’re following the correct approach to this assignment, especially since it’s called collaborative research, but the way we see it,  it’s best to go our separate ways in our research (while communicating often) in order to cover more ground.  Hopefully one day I’ll fully understand how to work collaboratively because of course, two heads are better than one, but for now I think I’ll  have to settle for the cooperative approach, or at least until graduation.

 
    This week, I was able to interview a close friend of the family in an attempt to answer the research question “Can a gluten and casein-free (GFCF) diet really help to improve the symptoms of autism spectrum disorders?”  Jenny, a mother of two, has had a lot of experience with the gluten-free diet, since both she and her daughter have tried it.  Her daughter, who was diagnosed with an autism spectrum disorder called PDD (Pervasive Developmental Disorder), was placed on the diet back in 2006 for six month period.  While Jenny’s reasoning for being on the diet (which is related toCeliac disease ) is not totally relevant to my research question, I do feel that her own experience with it has also been helpful in answering some of my questions because she was able to give me information about the diet that her daughter (who was only about 2 years old at the time) was, of course, unable to disclose.
     Though this was a rather lengthy interview which consisted of a great deal of information (explaining both the positives and negatives of a GFCF diet, which will be posted very soon), the outcome, in short, was that she did not see any significant improvements in her daughter’s symptoms of PDD.  Jenny was not all that surprised by this, since she had previously been warned (by others who have tried the diet, as well as medical professionals) of the strong possibility that the diet would make no difference in her daughter’s symptoms.  Though she had already been told that the diet was not a guarantee, she had also heard many success stories from other mothers who swore by it, as well as a few doctors, who had heard of quite a few people who had success with the diet.
    I was extremely pleased with the information I was able to obtain from this interview, but I am also hoping to interview someone who has experienced success with this diet, in order to get both perspectives on it.  As I have mentioned, Jenny has come across quite a few people who have had a great amount of success with it, so she is currently in the process of helping me get an interview with one of these mothers.  I am only hoping that this will happen within the next few days.

 
I am planning to interview a family friend, Jenn, who has a 7 year old daughter with an autism spectrum disorder, called Pervasive Developmental Disorder (PDD). I will be asking Jenn these  (not necessarily all of them) questions in order to gain information on her/her daughters experiences with the GFCF diet, as well as any other information that may help to answer our research question.

***If anyone would like to offer their suggestions to which questions I should consider asking/not asking, or people that would be good to interview on this topic, I would really appreciate your input! 

Can a gluten and casein-free (GFCF) diet really help to improve the symptoms of autism spectrum disorders?

1. When did you first learn of the possible link between autism spectrum disorders and foods containing gluten and casein?
2. Who was it that told you about the possible benefits of putting your child on a GFCF diet?
3. What have doctors told you about the diet?
4. Have you found many doctors to be knowledgeable on the theory?
5. Have you heard of many success stories with the diet?
6. Do you know how/why gluten and casein affect children with autism spectrum disorders?
7. Can gluten and casein be harmful to anyone or just those who can’t properly digest it?
8. Did you fully commit to the diet at all times?
9. What happens if your child consumes a food containing gluten or casein after being on the diet for an extended period of time? Will you need to start all over?
10. How long does it take to fully eliminate gluten and casein from the body?
11. Was it difficult to maintain the diet?  Why or why not?
12. What are some of the things were you required to do in order to ensure that you were fully eliminating gluten and casein from your/your child’s diet?
13. Were you required to make minor or major changes to you and your child’s lifestyle?
14. Is it expensive to maintain the diet?
15. Is there a difference in the taste of gluten/casein-free foods?
16. If so, did your child notice these differences?
17. Do you shop for organic products as well?
18. If so, why—are there certain products you always buy organic?
19. Does a GFCF diet require special foods or are there a lot of regular foods available that do not contain gluten and casein?
20. Do stores offer a wide selection of gluten-free and casein-free products?
21.   If not, did you have to purchase some of your food from specialty stores?
22.  Was eating out at restaurants difficult?
23.  Do you know of any restaurants that offer special menus offering gluten and casein- free foods?
24. Can you give some examples of foods that contain gluten?
25. Can you give some examples of foods that contain casein?
26. Did you notice any significant changes in your child’s behaviors while she was on the diet?
27.  If so, how long did it take for you to notice these results?
28. Now that you have tried a GFCF diet, do you believe that it has helped to reduce any of your child’s symptoms related to her disorder?
29. If you didn’t notice any changes in your child’s symptoms related to autism, did you notice any other benefits that your child experienced while on the diet, such as her general health, energy levels, moods, etc.?
30. Do you think the foods we eat have anything to do with the reason for so many of today’s children being born with autism spectrum disorders?

.. . . ..Stay tuned for the results of this interview!